Organisations
A B C D E F G H I J K L M N O P Q R S T U V W X Y Z
Action Research
(which has funded projects that are concerned with identifying possible causes and treatments of premature labour, which gives rise for one in ten babies in the UK).
website: http://www.action.org.uk/
Action on Pre-Eclampsia (APEC)
31-33 College road
Harrow,
Middlesex
HA1 1EJ
Tel: 0181 863 3271
Helpline: 020 8427 4217
website: www.apec.org.uk
Action for Sick Children
300 Kingston Road
Wimbledon Chase
LONDON
SW20 8LX
Tel: 0181 542 4848
website: www.actionforsickchildren.org.uk
Active Birth Centre
020 7482 5554
website: www.activebirthcentre.com
info@activebirthcentre.com
ADAPT (All Dependent And Pre Term Babies & Children)
ADAPT is a support network for families in Leicester/Leicestershire & Rutland
who have had either a premature baby or a baby that needed neonatal care.
This support is available when a baby is in a neonatal/special care baby unit and afterwards when the baby is home with his/her family.
ADDISS - National Attention Deficit Disorder Information Service And Support - We provide people-friendly information and resources about Attention Deficit Hyperactivity Disorder to anyone who needs assistance - parents, sufferers, teachers or health professionals. Whatever you're looking for in ADHD, we'll do our best to help.
website: www.addiss.co.uk
Association for Breastfeeding Mothers (ABM)
PO Box 207
Bridgewater
TA6 7YT
Tel: 0171 813 1481
020 7813 1481
website: http://www.abm.me.uk/Association for Post Natal Illness
25 Jerdan Place
London
SW6 1 BE
Tel: 0171 386 0868
Helpline 0207386 0868
website: www.apni.org
Association for the Improvement of Maternity Services (AIMS)
Supporting parents and professionals in the UK and Ireland
website: http://www.aims.org.uk/
ACT - the Association for Children's Palliative Care
website: http://www.act.org.ukB
Babyloss
The Babyloss website provides information and support online for anyone affected by the death of a baby during pregnancy, at birth, or shortly afterwards.
website: http://www.babyloss.com/
Birth Trauma Association
PO Box 671
Ipswich
Suffolk
IP1 9ATwebsite: http://www.birthtraumaassociation.org.uk/index.htm
Birth Defects Foundation
BDF Family Services Helpline
Martindale,
Cannock,
Staffs,
WS11 2XN.
Call between 9.30am - 3pm.
Tel: 01543 468400
www.birthdefects.co.ukBliss - The National Charity for the Newborn
Support for parents whose babies are in special care. BLISS was founded in 1979. As Britain's leading charity for newborn babies, its principal aim is to give every baby and equal start in life. BLISS donates lifesaving equipment to neonatal units nationwide, offers information and support to parents with babies needing specialist care at birth, and is strongly commited to supporting the education of nurses and midwives who work in the field of neonatology.
BLISS
68 South Lambeth Road
London
SW8 1RLTel: 0870 77 00 337
Freephone helpline no: 0500 618 140
E-mail information@bliss.org.uk
Website: http://www.bliss.org.uk
Bonnie Babies UK
WE ARE A NON-PROFIT VOLUNTARY ORGANIZATION. We knit, crochet and sew tiny premature items for our UK Hospitals. We also make burial gowns for the little ones who sadly don’t make it; we offer keepsakes to parents of an Angel our way of showing we care.
BONNIE BABIES
PO BOX 9269
CAMPBELTOWN
PA28 6WS
website: www.bonniebabies.co.uk
British Dyslexia Organisation
Unit 8, Bracknell Beeches
Old Bracknell Lane
Bracknell RG12 7BW
Helpline: 0845 251 9002
Office: 0845 251 9003
Fax: 0845 251 9005
website: http://www.bdadyslexia.org.uk
CARE The Scottish Association for Care and Support
After the Diagnosis of Fetal Abnormality
Griesla Gordan
Stair House Farm
Mauchline
Ayreshire
KA3 6PS
Tel: 01292 591741
Caesarean Support Group
Alexandra House
Oldham Terrace
London
W3 6NH
Tel: 01624 661 269
Caesarean Support Network
c/o 55 Coil Drive
Douglas
Isle of Man
IM2 2HF
Tel: 01624 661269
ChildLine is the UK's free, 24-hour helpline for children and young people in trouble or danger. If you want to talk to someone, call ChildLine free on 0800 1111.
website: www.childline.org.uk
Child Bereavement Trust
The Child Bereavement Trust (CBT) is a national UK charity. It was founded to improve the support offered by professionals to grieving families.The Child Bereavement Trust
Aston House, West Wycombe
High Wycombe, Bucks HP14 3AG
Tel: 01494 446648
Fax: 01494 440057
email: enquiries@childbereavement.org.uk
website: http://www.childbereavement.org.uk
Child Death Helpline
A helpline for all those affected by the death of a child
Freephone 0800 282986
website: http://www.childdeathhelpline.org.uk/
Cleft Lip and Palate Association
CLAPA
1 Eastwood Gardens
Kenton
Newcastle upon Tyne,
NE3 3DQ
0191 285 9396
020 7431 0033
website: www.clapa.com
The Coeliac Society
PO Box 220
High Wycombe
Buckinghamshire.
HP11 2HY
01494 437278
website: http://www.coeliac.co.uk/
Compassionate Friends
53 North Street
Bristol
BS3 1EN
Tel: 0117 9539 639
website: www.tcf.org.uk
Contact a Family
209-211 City Road
London
EC1V 1JN
Tel 020 7608 8700
Fax 020 7608 8701
Minicom 020 7608 8702
Helpline 0808 808 3555
Freephone for parents and families (10am-4pm, Mon-Fri)
e-mail: info@cafamily.org.uk
website: www.cafamily.org.uk
CRUSE Bereavment Care
126 Sheen Road
Richmond
Surrey
TW9 1UR
Tel: 0181 940 4808
website: http://www.crusebereavementcare.org.uk/
CRY-SIS
London
WC1N 3XX
Tel: 0171 404 5011website: http://www.cry-sis.org.uk/
Cuddles
Are a non-profit organisation attempting to help new-borns and their families by providing knitted and crocheted items.website: http://cuddles-uk.org/
Disabled Parents Network
Tel: 0870 241 0450
National Down's Syndrome Association
National Office:
155 Mitcham Road
London SW17 9PG
United Kingdom
Tel: 0181 682 4001
website: http://www.nads.org/Exploring Parenthood
The National Parenting Development centre
4 Ivory Place
Treadgold Street
London, W11 4BP
0171 221 6681 (Parent's Advice Line)Extra Special Parents Forum A forum set up for parents and carers of children and adults with special needs.
Fathers Direct (confidential support for new fathers)
Tel: 0808 800 2222website: www.fathersdirect.com
Foundation for the Study of Infant Deaths (FSID)
14 Halkin Street
London
SW1X 7DP
Tel: 0171 235 1721 (24 hour helpline)
website: www.sids.org.uk/fsid
Gingerbread, the leading support organisation for lone parent families in England and Wales.
London Based at Gingerbread National Office
Ext 314 Freephone 0800 018 4318
Tel: 020 7488 9300
Fax: 020 7488 9333
E-Mail: amanda@gingerbread.org.uk
www.gingerbread.org.uk
Group B Strep Support
preventing GBS infection in newborn babies
P O Box 203,
Haywards Heath,
West Sussex RH16 1GF
Company Reg. No. 5587535.
Charity Reg. No. 1112065
H.A.C.S.G. Hyperactive Children's Support Group
www.hacsg.org.uk
Home-Start UK
(Home support for families with young children across UK)
2 Salisbury Road
Leicester
LE1 7QR
Tel: 0116 233 9955
website: http://www.home-start.org.uk/
Hyperactive Children's Support Group
A UK based charity that does not advocate the use of drugs.
website: http://www.hacsg.org.uk/
ICPS The International Cerebral Palsy Society is a dynamic umbrella organisation founded in 1969 to help others to help themselves. It has members in over 60 countries mostly comprised of parent organisations and individuals with an interest in cerebral palsy.
InfertileWorldOnline
website: http://www.infertileworld.co.uk/
International Association of Infant Massage
website: www.iaim.org.uk
La Leàche League
BM3434
London
WC1N 3XX
Tel: 020 7242 1278 24 Hour Helpline
website: www.laleche.org.uk
Lone Twin Network (Twinless Twin)
P O Box 5653
Birmingham
B29 7JY
(Contact by post only.)
The Lone Twin Network (originally called the Lone Twin Register) was set up in May 1989 to offer a network of contacts and support to anyone whose twin has died, at whatever stage of life. The Network helps twins who have had similar experiences of loss to share their views and feelings and to offer and receive peer support.
LOOK (National Federation of families with visually impaired children)
Alexandra College
49 Oak Road
Harbourne
Birmingham
B17 9TG
Tel: 0121 428 5038
website: http://db2design.co.uk/look/userupdate/default.asp
MAMA (Meet a Mum Association)
14 Willis Road
Croydon
CR0 2XX
Tel: 0181 665 0357
website: http://www.mama.co.uk/
Midwivesonline
Bereavement Section
website: http://www.midwivesonline.com
Miscarriage Association
Support and information if you've had a miscarriagec/o Clayton Hospital
Northgate
Wakefield
West Yorkshire
WF1 3JS
Tel: 01924 200799 (England)
0131 334 8883 (Scotland)Website: www.miscarriageassociaion.org.uk
Mothers 35 plus
website: http://www.mothers35plus.co.uk/
Multiple Births Foundation
Queen Charlotte's & Chelsea Hospital
Goldhawk Road
London
W6 OXE
Tel: 020 8383 3519
Website: www.multiplebirths.org.uk
National Childbirth Trust (NCT)
Alexandra House Oldham Terrace
Acton
London W3 6NH
Tel: 0181 992 8637
www.nctpregnancyand babycare.comAlso telephone the Breastfeeding line 0870 444 8708 for help and support
National Childminding Association
8 Masons Hill
Bromley
Kent, BR2 9EY
0181 464 6164
website: http://www.ncma.org.uk
National Council for One Parent Families
0800 018 5026
website: http://www.oneparentfamilies.org.uk/
The National Association for Gifted children
NAGC is the UK's foremost membership charity that deals with all aspects of giftedness in children.
website: http://www.nagcbritain.org.uk
NIMBA (Northern Ireland Mother & Baby Appeal)
Hope House
54 Scotch Quarter
Carrickfergus
Co Antrim
BT38 7DP
T - 028 93329933
F - 028 93328967
website: www.nimba.org.uk
ParentAbility
Alexandra House
Oldham Terrace
London, W3 6NH
0181 992 8637
(An NCT Network supporting pregnancy &
parenthood for people with disabilities)
Parentline Plus
For anyone who is a parent to a child
Free Helpline
Tel: 0808 800 222
Website: www.parentlineplus.org.uk
Parent Network
44-46 Caversham Road
London
NW5 2DS
Tel: 0171 485 8535
Parents at Work
77 Holloway Road
London
N7 8JZ
Tel: 0171 700 5771
Preston Multiple Births Group This group is run by Kara who helps with our support group.
Meets at the Wacky Warehouse within the Toy Soldier
on, Deepdale Retail Park
We meet the 1st and 3rd Monday every month
between
10am til 12noon
Parents expecting multiples are welcome!
email contact Prestontwinclub@aol.com
We offer support and friendship, but mainly a place to feel like one of the
crowd!
Probes (Parents Recognition of Paedriatric Errors)
Iatrongenic Centre
56 Southland Drives
West Cross
Swansea
SA3 5RJ
Relate
Marriage Guidance Council
Head Office
Herbert Grey College
Little Church Street
Rugby
Warwickshire
CV21 3AP
Tel: 01788 573241 Support and councelling
website: www.relate.org.uk/
RNID
19-23 Featherstone Street, London EC1Y 8SL
Telephone: 020 7296 8000
Textphone: 020 7296 8001
Fax: 020 7296 8199.
website: http://www.rnid.org.uk
SCOPE (support for cerebral palsy and related disabilities)
6 Market Road
London N7 9PW
Tel:0808 800 3333
website: www.scope.org.uk
Sickle Cell Society
54 Station Road
London, NW10 4UA
0181 961 7795
website: www.sicklecellsociety.org/
SMA Careline (for feeding problems)
Tel: 0345 762 900
S.O.F.T. (UK) Support Organisation For Trisomy 13/18 and related disorders
SOFT UK Helpline: +44 (0) 121 351 3122
Email: enquiries@soft.org.uk
website: http://www.soft.org.uk/
St John's Ambulance (First Aid courses and Information).
http://www.sja.org.uk
Stillbirth and Neonatal Death Society (SANDS)
28 Portland Place
London
W1N 4DE
Tel: 020 7436 7940 Support/Info
website: http://www.uk-sands.org
Support Around Termination For Abnormality
SAFTA
73-75 Charlotte Street
London, W1P 1LB
0171 631 0285 (Helpline)
0171 631 0280 (Admin)
Tamba - the Twins and Multiple Births Association.
Tamba is a nationwide UK charity providing information and mutual support networks for families of twins, triplets and more.
website: http://www.tamba.org.uk/Tamba
2 The willows
Gardner Road
Guildford
Surrey
GU1 4PG
0870 7703305Freephone Twinline – 0800 1380 0509 (between 10am-1pm and 7pm – 10pm)
TAMBA The Bereavement Support Group (BSG)
Tamba BSG is a parent to parent support group and is run by bereaved parents.All BSG supporters are volunteers and are parents who have lost a baby or babies during a multiple pregnancy or at any stage after birth.
website: http://www.tamba-bsg.org.uk
Tiny Life (The premature baby charity for Northern Ireland)
33 Ballynahinch Road
Carryduff
BT8 8EH
Tel: 028 9081 5050
Fax: 028 9081 5850
Email: info@tinylife.org.ukwebsite: http://www.tinylife.org.uk
Tommy's funds research and provides information on the causes of premature birth and other pregnancy complications. They have a pregnancy information line so you can ask your questions to a midwife.
Tommy's, the baby charity
Nicholas House
3 Laurence Pountney Hill
London EC4R 0BB
Pregnancy Information line: 0870 777 30 60
Pregnancy information Email: info@tommys.org
Donation Line: 020 7398 3460
website: www.tommys.org
Twins and Multiple Births Association (TAMBA)
Harnott House
309 Chester Road
Little Sutton
South Wirral L661 QQ
Tel: 0151 348 0020website: www.tamba.org.uk
The UK Twin to Twin Transfusion Syndrome Association, is made up of parents, professional carers, and research professionals, all dedicated to raising the awareness of the syndrome, funding research, and providing care and advice to sufferers.
website: http://www.twin2twin.org/
Twinsonline is a U.K. based twins and multiple birth website and forum which offers information, advice and moral support to adult twins and their siblings and partners, people expecting twins and parents of twins, triplets and more.
website: http://www.twinsonline.org.uk/
24 Weeks Plus
Helping premature babies and their families
http://www.24weeksplus.com
If you would like to add your organisation to this list then please do not hesitate to contact me.